Yes, I should be ashamed for taking so long to update this site. I am. I'm afraid life gets in the way--but isn't that a good thing? There was a time when I wasn't sure I'd have a life, so being busy and preoccupied is a great!
Let me say that I'm very, very happy to be able to update this blog and say that as of today, 2/15/2013, I can still say NED. (No evidence of disease.) That is a fantastic thing to say. My life has been pretty ordinary. Another good thing. Especially since many people who receive this life saving surgery have major quality of life issues. I think we'd all argue (at least for a while) that having life is better than not. Then, maybe we get to the point where decisions have to be made. I am of the opinion that decisions are better than not being here... So I hope for many more years of NED and a good quality of life.
Since I lasted posted, which was in 2010, I've had three hernia repairs and a Desmoid tumor removal. Again, I was lucky that these surgeries did not affect greatly my quality of life. I am currently recovering from hernia repair # 3. It will be a few weeks before we know if it's taken or not. I hope so, because surgery, even minor abdominal surgery is hard and it is hard on my family too. They have to be there to help nurse me back to health and wait on me hand and foot. And I will be forever grateful to them. My sweet husband is out getting groceries now, because I'm not quite up to it.
I promise to be more active on the site. I've been active in the Belly Buttons support group these last four years and I believe that this group is a very important resource for people diagnosed with abdominal cancers.
That's all for today.